Max Appeal & DiGeorge Syndrome (22q11 Deletion)

September 2008:

What a Misrable month so far, It's been a "crap" Summer & Weather forcaster's Predict a bad winter.

Anyway, My name is Craig A. I come from Leicestershire, East Midlands, UK.

I suffer from a "rare" Syndrome - DiGeorge Syndrome, 22q11 Deletion.

I was diagnosed when I was 14 years old by Doctor's, Since then me & my Family have been trawling the Internet looking for Answers to my Syndrome.

I will have this DiGeorge Syndrome for life & I try to lead a normal life, Certain known Problems known with DiGeorge Syndrome are the following:

Leg Pain's, Small Jaw, Weak Immune System, Hole In The Heart, Bent Spine (S Shape), Low Confedence, Learning Difficulties, Toilet Difficulties, too many to name really.

About 5 year's ago, We as a Family was directed to this Charity called "Max Appeal" Max Appeal - Dedicate time & effort into Finding out different & new thing's surrounding DiGeorge Syndrome, Max Appeal is lead by a great team. Here's just a few name's: Julie Wootton & Paul Wootton (Main Leader's), Sponsorship & Fundraising Team: Mike & Claire Hennessey.

Max Appeal need all of the Sponsorship they can get there hand's on, They also need over £50,000 each year to keep the Charity up and running. And also having Regular Meeting's, Different Event's through out the Year, One big get - together at the end of the year & finally flying over different part's of the world for getting new Re - Search into DiGeorge Syndrome.

I'm asking you to help out "Max Appeal" by just donating Money or passing along there Charity name & the name of the Syndrome, I forgot to menion Max Appeal is based in Stourbridge, West Midlands, UK. There Patron is Anthony Head from Little Britain & Doctor Who

Check out Max Appeal's website: http://www.maxappeal.org.uk/

They have got a Forum, To join click here:

http://health.groups.yahoo.com/group/maxappeal/

My first ever Blog

Take Care

Captain Cubbio